A bit about me, or should I say ME or CFS (as it now seems to be known).
I am Miss Kitty-Whip, sufferer of ME/CFS for many years. I stumble along through life making do as best I can, usually, somehow I muddle through (allegedly)!
Anyway, for the typical CFS person just doing mundane, boring things that a regular fit person would do become quite a triumphant achievement.
Like today for instance, not feeling too bad, so ........went pants shopping, how very exciting!
The thing with CFS is that most of us don't really look unwell, maybe a little jaded, but generally pretty normal. So the worst thing you can possibly say ever in the whole of the universe to me or any CFS victim is......'You look so well' Argh, sperm of the devil, curses on you and your offspring. We may very well look well, that would be the vegetarian diet, inability to tolerate much alcohol, being in bed most of the time and general clean living. But, for all those non ME/CFS victims here's a scenario: If you had the worst hangover ever in the world, coupled with the onset of flu, the whole shebang; aching joints, sore throat, shivers, dizziness.....you get the picture? OK if a friend asked you to go to the cinema and you felt that bad would you go? No, you wouldn't. Well, that is how a typical CFS person feels most days, and no matter how any of your 'well' friends nag, "but you'll only be sitting down in the cinema, it's not as if we're going to be walking around or anything." No,no,no - the answer is NO!
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