Gosh, it's been months since I've checked in darklings. And a very hectic few months its been!
My birthday was spoiled this year by the arrival of some forms in a nasty brown envelope nestled amongst all the cards. The forms were for ESA as the benefits system is being changed by the Tories. Apparently next year they are changing it yet again, huh, that's as much use as a marzipan dildo, what is the point? David Cameron is so thick that light has to bend around him! Off with his head, or should I say orf with his head!
So, as you can imagine, Kitty Whip towers has been stress city.
Honestly, filling in those forms for the benefit buggers has been like studying for an exam. I've been busier than a two twatted hooker running around all over the place, organising letters of support from my doctor and other medical professionals. Well, I think I've finally got it sorted, it will be cutting things a bit fine, but paws crossed everything will be ok. I've had such brilliant advice from friends and loads of support.
As a result of all the stress I've had swollen glands on and off, but mainly on for over 6 weeks! I have been so very poorly and my mood has plummeted to an all time low. Lets hope things improve soon, send me good luck vibes darklings, I may very well need them!
Sunday, 11 November 2012
Saturday, 18 August 2012
Head above water
Well, I'm plodding on at the moment on a kind of even ish keel. Still very tired (as ever), but getting into my stride using my pedometer (excuse the pun)!
Having a week away in a cottage in the middle of nowhere helped. I've come back more relaxed and calm.
I'm going with the flow, though still in my coffin rather too much.
I've become less embarrassed about using my stick, if it gets me out for a walk then that's a good thing right?
It is a rather funky stick - its black with pretty flowers on!
My kitty cat keeps me amused, he really looks after me, especially with his antics of running around playing with his tabby friend. Cats are just so therapeutic, don't know why, but it's true!
My joints have been extra stiff, crackly, and sore lately. The physiotherapist who runs the graded exercise class that I go to says its because of moisture in the air. Hot, sticky, humid weather causes the joints to swell, which causes the stiffness. The answer is to not stay in one position for too long. Have a stretch, move about every now and then.
I'm getting better at pacing myself, I think it helps that I'm now in touch with quite a few people who have M.E, you swap tips etc. What works for one person may not work for another, it's trial and error really.
Well, Miss Kitty Whip is out tonight for a drink with some good friends. Best spend the day in my coffin so I have enough energy. I tend to drink alcohol very seldom nowadays. It just makes me feel unwell for days afterwards.
I do however like a glass of fizz, or a Pinot noir though!
Right, I had best crawl out of my coffin, well it is fastly approaching lunch time! Time for a hot, relaxing bath.
Need to do some yoga stretches, where's my kitten? He usually shows me how it's done, he's so much better at them than me!
Having a week away in a cottage in the middle of nowhere helped. I've come back more relaxed and calm.
I'm going with the flow, though still in my coffin rather too much.
I've become less embarrassed about using my stick, if it gets me out for a walk then that's a good thing right?
It is a rather funky stick - its black with pretty flowers on!
My kitty cat keeps me amused, he really looks after me, especially with his antics of running around playing with his tabby friend. Cats are just so therapeutic, don't know why, but it's true!
My joints have been extra stiff, crackly, and sore lately. The physiotherapist who runs the graded exercise class that I go to says its because of moisture in the air. Hot, sticky, humid weather causes the joints to swell, which causes the stiffness. The answer is to not stay in one position for too long. Have a stretch, move about every now and then.
I'm getting better at pacing myself, I think it helps that I'm now in touch with quite a few people who have M.E, you swap tips etc. What works for one person may not work for another, it's trial and error really.
Well, Miss Kitty Whip is out tonight for a drink with some good friends. Best spend the day in my coffin so I have enough energy. I tend to drink alcohol very seldom nowadays. It just makes me feel unwell for days afterwards.
I do however like a glass of fizz, or a Pinot noir though!
Right, I had best crawl out of my coffin, well it is fastly approaching lunch time! Time for a hot, relaxing bath.
Need to do some yoga stretches, where's my kitten? He usually shows me how it's done, he's so much better at them than me!
Monday, 30 July 2012
Antibiotics + earl grey tea
I am a poorly, sickly kitten, antibiotics (not my drug of choice) for 10 days now. At least I get to wash it down with my tipple of choice - earl grey tea with unsweetened soya milk. I am so rock 'n roll!
I've started participating in a graded exercise group run for people suffering with M.E/CFS. It's hard work, but fun, I do think it's a brilliant idea. We're all very positive about it.
We start with gentle stretching, then ease in to some movement getting the heart rate up a bit. We do 30 second intervals of light weights, then some loosening off, and ending with a short relaxation.
I have actually found its helping me spend less time sleeping in my coffin. I think it probably just makes you feel more upbeat.
I'm off to North Yorkshire in a few days for a whole week of total relaxation! Pure bliss, I just can't wait, I will miss my baby Grouch kitty though. His cuddles have healing powers, they really do.
Send good weather vibes people please, I want it to be sunny so I actually look like I've been away!
Naughty Kitty Whip is typing this on her phone whilst still languishing in her coffin, tsk tsk. Right, I'm getting up now, no really I am .................
I've started participating in a graded exercise group run for people suffering with M.E/CFS. It's hard work, but fun, I do think it's a brilliant idea. We're all very positive about it.
We start with gentle stretching, then ease in to some movement getting the heart rate up a bit. We do 30 second intervals of light weights, then some loosening off, and ending with a short relaxation.
I have actually found its helping me spend less time sleeping in my coffin. I think it probably just makes you feel more upbeat.
I'm off to North Yorkshire in a few days for a whole week of total relaxation! Pure bliss, I just can't wait, I will miss my baby Grouch kitty though. His cuddles have healing powers, they really do.
Send good weather vibes people please, I want it to be sunny so I actually look like I've been away!
Naughty Kitty Whip is typing this on her phone whilst still languishing in her coffin, tsk tsk. Right, I'm getting up now, no really I am .................
Monday, 2 July 2012
Catatonic Kitten
Hello darklings,
I have been sleeping like the dead, needing about 12 hours asleep in my coffin most nights!
I recently went on a stress less workshop arranged by my fabulous yoga teacher. The course was using the principles of NLP, demonstrating how you can change thought processes to your advantage.
I also had some trigger point massage which has worked wonders, it's quite painful and left me a little bruised, but it's amazing how something like that can work!
My doctor (Doc Robbo) as I refer to him suggested getting a pedometer. He said by increasing my walking it may combat the tiredness. It's such hard work when your body is literally screaming at you to stop. Going for a walk is the last thing you want to do, but funnily enough it's quite satisfying filling in the amount of steps I do in a day in to my diary. They reckon a healthy person should do 10,000 per day! I do mine at a very slow pace, but Doc Robbo says it doesn't matter about the speed, it's the amount of steps which count.
I do yoga nearly every day, and have done for many years, but have no stamina for walking. I'm very bendy and got diagnosed with hypermobile joints recently, which explains why I get a lot of pain.
I nearly got washed away with the floods last Thursday, along with my yoga teacher. We were driving to the class and we thought the world was ending, very frightening stuff this freak weather!
I have been sleeping like the dead, needing about 12 hours asleep in my coffin most nights!
I recently went on a stress less workshop arranged by my fabulous yoga teacher. The course was using the principles of NLP, demonstrating how you can change thought processes to your advantage.
I also had some trigger point massage which has worked wonders, it's quite painful and left me a little bruised, but it's amazing how something like that can work!
My doctor (Doc Robbo) as I refer to him suggested getting a pedometer. He said by increasing my walking it may combat the tiredness. It's such hard work when your body is literally screaming at you to stop. Going for a walk is the last thing you want to do, but funnily enough it's quite satisfying filling in the amount of steps I do in a day in to my diary. They reckon a healthy person should do 10,000 per day! I do mine at a very slow pace, but Doc Robbo says it doesn't matter about the speed, it's the amount of steps which count.
I do yoga nearly every day, and have done for many years, but have no stamina for walking. I'm very bendy and got diagnosed with hypermobile joints recently, which explains why I get a lot of pain.
I nearly got washed away with the floods last Thursday, along with my yoga teacher. We were driving to the class and we thought the world was ending, very frightening stuff this freak weather!
Friday, 1 June 2012
Below par!
I've just got over the mother of all stomach bugs. In fact, I know the new Prometheus film has just come out, it felt like an Alien was growing inside my tum!
It's taken two blooming' weeks to start feeling on par again, and believe me I've still a way to go.
I had a very positive chat with one of the CFS team at The Molineux centre yesterday. We are so lucky to have it here. I've joined their forum so we can all have a jolly good moan on line.
I've been getting help with anxiety/panic attacks. Yoga, yoga and more yoga is the answer!
Yoga is my loyal and trustworthy friend, I have been practising every day for a very long time now. It's nourishment and healing medicine for the body!
Right, I'm off to er do some yoga!
Yoga on, or should I say nameste!
It's taken two blooming' weeks to start feeling on par again, and believe me I've still a way to go.
I had a very positive chat with one of the CFS team at The Molineux centre yesterday. We are so lucky to have it here. I've joined their forum so we can all have a jolly good moan on line.
I've been getting help with anxiety/panic attacks. Yoga, yoga and more yoga is the answer!
Yoga is my loyal and trustworthy friend, I have been practising every day for a very long time now. It's nourishment and healing medicine for the body!
Right, I'm off to er do some yoga!
Yoga on, or should I say nameste!
Wednesday, 2 May 2012
The other night I thought I heard the walls breathing....
Darklings, apologies for the long gap.
I have been very tired lately, and spending a lot of time in my coffin.
One good deed was knitting Bob the famous Big Issue busking cat a few cute scarfs, hopefully someone might photograph him wearing them.
I have been doing a lot more relaxing yoga, the other night I was yoga-ing before bed time and think I fell asleep! I'm sure I heard the walls breathing when I surfaced.
I have a great new app for my phone devised by M.E North East it allows you to plot activity levels and sleep patterns. It's a nifty and useful bit of technology that I'm finding very helpful.
I've started re watching one of my most favourite t.v programmes from the very beginning LOST. It's just so superb, on par with the likes of Twin Peaks.
Me and the boyfriend are off for a week in Alnwick soon, Harry Potter country!
Can't wait, so need a change of scene. The kitten will not be going to the kennels this time. We are going to try out a pet sitter/cat feeder I am very nervous about this. Mind you, if I didn't have something to worry about, well, I wouldn't be me would I?
I have been very tired lately, and spending a lot of time in my coffin.
One good deed was knitting Bob the famous Big Issue busking cat a few cute scarfs, hopefully someone might photograph him wearing them.
I have been doing a lot more relaxing yoga, the other night I was yoga-ing before bed time and think I fell asleep! I'm sure I heard the walls breathing when I surfaced.
I have a great new app for my phone devised by M.E North East it allows you to plot activity levels and sleep patterns. It's a nifty and useful bit of technology that I'm finding very helpful.
I've started re watching one of my most favourite t.v programmes from the very beginning LOST. It's just so superb, on par with the likes of Twin Peaks.
Me and the boyfriend are off for a week in Alnwick soon, Harry Potter country!
Can't wait, so need a change of scene. The kitten will not be going to the kennels this time. We are going to try out a pet sitter/cat feeder I am very nervous about this. Mind you, if I didn't have something to worry about, well, I wouldn't be me would I?
Friday, 17 February 2012
Good coffee cures all ills!
Afternoon darklings,
I am supping the most divine nectar - a caffe latte made with soya milk and caramel syrup. It tastes sooooo good!
Tried a little experiment last night which seems to have worked. At the M.E/CFS group yesterday we were all told we had to follow this bedtime routine; start winding down an hour before bed, tv off, computer/phone off etc. Warm bath, herbal tea and some sort of relaxation/meditation cd (not in bedroom). Then bed, if possible no reading in bed, unless it's something light. I had a wonderful, restful sleep and actually woke up feeling awake for once!
In the morning you should take time to wake up fully, so once you get up, no going back to bed!
I feel like I've had a reasonably productive day - and I haven't needed an afternoon snooze either! How can something so simple be so effective? Answers on a postcard please...........
I am supping the most divine nectar - a caffe latte made with soya milk and caramel syrup. It tastes sooooo good!
Tried a little experiment last night which seems to have worked. At the M.E/CFS group yesterday we were all told we had to follow this bedtime routine; start winding down an hour before bed, tv off, computer/phone off etc. Warm bath, herbal tea and some sort of relaxation/meditation cd (not in bedroom). Then bed, if possible no reading in bed, unless it's something light. I had a wonderful, restful sleep and actually woke up feeling awake for once!
In the morning you should take time to wake up fully, so once you get up, no going back to bed!
I feel like I've had a reasonably productive day - and I haven't needed an afternoon snooze either! How can something so simple be so effective? Answers on a postcard please...........
Wednesday, 18 January 2012
Kitten Chaos!
It's been a while, I've been busy chasing a gorgeous tabby kitten out the cat flap! He comes in to play with our kitten, no idea where he's from or who he belongs to!
On to other things - I went to a yoga class last week designed especially for people who suffer with the illness. It's run by M.E NorthEast and was very good! Next class tomorrow.
Managed a trip to the cinema this afternoon to see The Artist. Wow, what a wonderful film it is! I feel all warm and fuzzy inside now (in a good way)!
Weekend away to York this weekend, it's a yearly tradition - the panto (oh yes it is)! I think it might be The Swiss Family Robinson, although the title probably has nothing to do with the content!
So darklings, that's about it for now.
I have been fairly busy, battling with energy levels, but getting by.
On to other things - I went to a yoga class last week designed especially for people who suffer with the illness. It's run by M.E NorthEast and was very good! Next class tomorrow.
Managed a trip to the cinema this afternoon to see The Artist. Wow, what a wonderful film it is! I feel all warm and fuzzy inside now (in a good way)!
Weekend away to York this weekend, it's a yearly tradition - the panto (oh yes it is)! I think it might be The Swiss Family Robinson, although the title probably has nothing to do with the content!
So darklings, that's about it for now.
I have been fairly busy, battling with energy levels, but getting by.
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