The clue is in the title, unfortunately us ME people don't have great social lives.
OK you've been invited on a night out, so being sensible you stay in bed most of the day to conserve energy. I'm afraid it doesn't work like that.
Sometimes, even if you feel OK after a night out beware - it will hit you a day or two later like a ton of bricks!
You have to plan ahead, but sometimes that goes pear shaped, it's all very stressful!
I have missed out on nights out for the past 2 weekends now, I'm determined not to make it 3 in a row. I'm going out tonight even if it kills me!
A face book friend and fellow ME sufferer Ms L pointed out, that sometimes even if you feel awful physically after going out, mentally you are high as a kite and happy inside! It is also kind of good for you to mingle and forget about the illness.
The tiredness is hard to describe, it's like no other. It comes down like a black veil when you least expect it, and leaves you so fatigued you could literally lie down on the pavement (or wherever you happen to be at that moment). So.......going to gigs is almost impossible, unless you know the venue, and there are chairs or a seating area, though usually that means you can't see a thing.
Right, I'm off to find the kitten, I need a big cuddle!
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